We've been at this now for over 3½ years, trying to cover every new medication or company reliably as the industry grows. We've also tried to fairly report on all patient/company/medication issues and controversy, causing many battles and multiple legal threats behind the scenes over time.
It's that latter part which causes stress, conflict and drama, time and time again. Our inboxes get stuffed every day with patient issues, and we're expected to wade in and fight patient's corner at every turn - yet it also genuinely inhibits making progress on our platform otherwise, and is incredibly draining personally.
We're making the tough decision to stop getting involved with patient issues, to stop reporting on controversy ourselves, and instead leave patients to report and discuss on our forums, Reddit, Facebook groups, by YouTubers etc. There's enough larger platforms out there these days for patients to be able to make themselves heard sufficiently, without us having to get involved directly.
Our mandate is to cover medication/industry company information, and frankly not act as the organisation trying to self-police the entire industry. The former we're consistently praised for, the latter causes constant controversy.
Those whom know me personally, know just how important it is to me that companies are properly held to account, that non-compliant policies are challenged, and that patient's issues are challenged/resolved - but I've made the decision, it's not my job and I refuse to do it any longer. Patients can speak for themselves, without us amplifying their voice.
We're going back to our roots and focusing on improving our core information services and platform. We're also doing all we can to polish up our accounts system, ready for centralised public reviews to launch across all companies/medications - this coverage alone should catch and highlight issues by default, without our manual intervention.
I hope others understand our reasoning here – there's truly only so much weight we can carry on our shoulders.
It's that latter part which causes stress, conflict and drama, time and time again. Our inboxes get stuffed every day with patient issues, and we're expected to wade in and fight patient's corner at every turn - yet it also genuinely inhibits making progress on our platform otherwise, and is incredibly draining personally.
We're making the tough decision to stop getting involved with patient issues, to stop reporting on controversy ourselves, and instead leave patients to report and discuss on our forums, Reddit, Facebook groups, by YouTubers etc. There's enough larger platforms out there these days for patients to be able to make themselves heard sufficiently, without us having to get involved directly.
Our mandate is to cover medication/industry company information, and frankly not act as the organisation trying to self-police the entire industry. The former we're consistently praised for, the latter causes constant controversy.
Those whom know me personally, know just how important it is to me that companies are properly held to account, that non-compliant policies are challenged, and that patient's issues are challenged/resolved - but I've made the decision, it's not my job and I refuse to do it any longer. Patients can speak for themselves, without us amplifying their voice.
We're going back to our roots and focusing on improving our core information services and platform. We're also doing all we can to polish up our accounts system, ready for centralised public reviews to launch across all companies/medications - this coverage alone should catch and highlight issues by default, without our manual intervention.
I hope others understand our reasoning here – there's truly only so much weight we can carry on our shoulders.
I can see why he's doing this though it is too much to take on for one person
